61: Noah Mussay talks about spina bifida

What is spina bifida? What is it like living with the ongoing of the birth defect as a creative twentysomething American?

Noah Mussay talks about childhood, school, work, life and sled hockey, and gives us a few pointers on the way he prefers strangers ask about his condition (hint: be curious, not entitled). 

Note: After the last question here, I asked Noah what he does for fun outside of work and his former sled hockey days. He said he’s reading Robert Jordan gigantic “Wheel of Time” series. He talked me into it, and I’ve got a copy of the first book coming from the library. I'm 48 now, and I tried to read it way, way back when it first started in 1990, when I was 15. Thanks, Noah. I’ll let you know what I think.

Second note: Noah says he's noodling around the idea of doing a podcast where he talks to other people about their lives with disabilities. He's got a great voice and ideas, so I really, really hope he does. I'd listen!